Hi everyone! Neil and I have been MIA for awhile as we went down to Sandestin in Florida for some much need R+R and to get our feet back under us. I have posted some photos of our time down there for people to check out. We have a place down there and are very blessed to have a spot to escape to and have always enjoyed our time there. This trip, as you can imagine, we were a bit more focused on a low key get away and, as you will see in the photos, Sandestin provides many opportunities to do just that. But what the pictures don’t show is the feeling of your soul exhaling while looking up at the stars on the beach or wanting to stand up and clap after seeing the sun set over the bay. These are the moments I am most grateful for.
So some updates…the hair is really starting to go now and I have to say I am pretty darn proud of my little hair follicles for hanging on this long…God love the little guys. I was upset at first, but I think it was more because I thought you were suppose to be than really being that sad about the actual hair. Well, that lasted about 5 minutes because I couldn’t stop laughing at the furry pile that was accumulating in the sink as I brushed my hair. It doesn’t come out in clumps as I had thought, or at least mine hasn’t but rather in large volumes all over. I am absolutely amazed at the amount of hair that is on our heads! I am not kidding when I tell you that every time I brush my hair it looks like Donald Trump’s toupee has landed in my sink…yet there’s more! I actually woke up the other night at 3 am to find a fur ball of hair in my face…pretty fancy, huh? At some point I will get sick of seeing what looks like a furry critter in my shower drain and just shave it off. It’s time to do my roots anyways so this will just save me a trip :)
What I have come to realize with all of this is regardless of whether I am balding, grubby after a run, lazy in my saturday comfy clothes, having a great hair and makeup day or all dolled up to go out…I’m the same girl. And it’s not just the hair the thing. In a moment, everything I didn’t think defined me was stripped away and I became acutely aware that there are many “parts” of who I am and things that I love to do, but they are only parts just the same. Everyone has a story and this will just be part of mine…it will not define me.
So what’s next? Round two of the good stuff is next week kicked off with a port being put in on Tuesday morning followed by chemo Wed, Thurs, Friday. We will talk with the high dose chemo/bone marrow group on Thurs afternoon of next week as well and will know more of a plan after that. In the mean time I am busy catching up from being away and continue to focus on lots of positive thoughts and prayers to expedite getting this stuff out of me because, to be quite honest, it is just slowing me down! Also spending time with friends and enjoying all the cards, emails, calls and texts from everyone. I can truly feel all the good thoughts and prayers that everyone is sending…so keep ’em coming cause it’s working! A very sincere and big thank you to everyone for your continued love and support.
With gratitude and love,